• Project title: R2PS - LGBTI+ Health Promotion Research Network
• Project leaders: Gabriel Girard (SESSTIM), Solveig Le Laurain (LPS), Marie Préau (POPS), Valentin Brouttier (Chaire LGBTQI+), Elise Marsicano, Ahmed Hamila (Clinique Mauve), Clément Moreau, Elian Barcelo and Sasha Dvanova
• Project dates: September 2024 to August 2026
• Key words: LGBTI+ health; health promotion; Research; Training
• Summary for the general public: (coming soon)

• Project title: Cancer Applications Partnership Program (CAPP) Rapid whole-genome sequencing in acute care child for
  suspicion of cancer
• Host team: Centre de Recherche du CHU de Québec; Population Health Axis: Associate Professor Jason Robert GUERTIN, Université LAVAL
• Mobility dates: January 2024
• Key words: Cancer; genome; genetic anomalies; infants; application (Pheno-Var); sequencing
  

• Project title: The right to be forgotten and estimation of excess risk in the absence of disease-specific registry data: methodological approaches to support public health decision-making
• Host team: Institute of Statistics, Biostatistics, and Actuarial Sciences / Louvain Institute for Data Analysis and Modeling. Director: Catherine LEGRAND, Université catholique de Louvain, Belgium
• Mobility dates: July 3 to 8, 2023
• Key words: Cancer; Right to be forgotten; Relative survival; Registries; Cohorts
• Summary for the general public:

Over the past two decades, a great deal of work has been done in France, and to a lesser extent in Belgium, to facilitate access to insurance products for people with a perceived aggravated risk. This work has resulted in the adoption of the "right to be forgotten" in French (in 2016) and Belgian (in 2019) legislation. The basic idea behind this "right to be forgotten" is that a person who has had cancer has the right, 10 years after the end of the last therapeutic protocol, to no longer declare it when applying for outstanding balance insurance for the purchase of a home. On the basis of work carried out by statisticians, epidemiologists and doctors, this 10-year period has been (greatly) reduced for certain types of pathology. In France, it has also been extended to other types of pathology. Our partners in Belgium are currently working to extend the right to forget in Belgium, in order to (1) reach the same level as in France, (2) include other pathologies and (3) include other insurance products (in particular, insurance linked to professional loans or life annuities). This work relies mainly on the use of survival analysis techniques, and requires the use of follow-up data, both for cohorts suffering from the pathology under study, and for the general population (or ideally the general population excluding people suffering from the pathology under consideration). However, such data are often non-existent or incomplete in terms of adjustment covariates (data from population registers are generally only stratified by sex and age category).

Faced with this lack of appropriate data, innovative solutions need to be implemented. To this end, we have chosen to use cohort or registry data from other countries and "adjust" them to the specificities of the country of interest (France or Belgium). This methodological work is being carried out within the framework of a university thesis co-supervised by Belgium and France. Simulations are currently underway to test the two methodological approaches we are developing, according to different scenarios. One is based on the use of an excess mortality model correcting for the missing information in general population mortality tables, and the other on the use of a GAM model correcting for this lack of information.

This period of mobility enabled progress to be made in the course of the project, as all the contributors were present at the same time, with time dedicated to this Research work. It also provided an opportunity to present to the members of this Institute work carried out in the past, paving the way for that carried out as part of this collaboration.

• Project title: Sociological study of the effects of a low-risk drug consumption room on local residents: FERRY B in the city
• Project leaders: Marie Dos Santos (SESSTIM) and Stéphane Akoka (ASUD Mars Say Yeah)
• Project dates: January 2024 to June 2024

• Title of the thematic school, organizing structure : 90ème Congrès de l'Acfas | Colloque 426 - Smart drugs, microdosing, nootropics : " devenir performant " dans les milieux de travail aujourd'hui
• Date: May 9, 2023

• Project title: HEPRESCA - Documenting the implementation of a housing model and its socio-sanitary effects on women and children: "L'Auberge marseillaise".
• Project leaders: Perrine Roux (SESSTIM), Fabienne Orsi (LPED) and Thémis Apostolidis (LPS)
• Project dates: May 2023 to May 2024
• Key words: precariousness; housing; women; cooperation; public health
• Summary for the general public: (coming soon)

• Project title: RAMRES - Medical Racism and Social Representations
• Project leaders: Bouchra Zouhri (LPS) and Gabriel Girard (SESSTIM)
• Project dates: May 2023 to May 2024
• Key words: Medical racism; social inequality in health; theory of social representations; theory of social identity.
  identity theory
• Summary for the general public: (coming soon)

• Project title: OCAPI - Obesity and social contagion in adolescents: a pilot study
• Project leaders: Patrizia Carrieri (SESSTIM), Maxime Luiggi (SESSTIM) and Thémis Apostolidis (LPS)
• Project dates: September 1, 2023 to August 31, 2024
• Key words: Overweight; obesity; adolescents; socio-economic status; social contagion
• Summary for the general public: (coming soon)

• Title of event: Chaire Autumn University: Involving people affected by cancer in cancer research
• Event dates: November 17 to 19, 2023

• Project title: NASH Itinerary for early Detection and care: a medico-economic Assessment (NASHIDA)
• ISSPAM member project leaders: Patrizia Carrieri and Patricia Marino (SESSTIM)
• ISSPAM partner: Jeffrey Lazarus, Barcelona Institute for Global Health (ISGlobal)
• Post-doctoral students : Davide Fortin